Lupus Foundation of America
The Lupus Foundation of America works to improve the quality of life for all people affected by lupus through programs of research, education, support and advocacy.
The Lupus Foundation of America works to improve the quality of life for all people affected by lupus through programs of research, education, support and advocacy.
1. Reduce time to diagnosis.
2. Ensure people with lupus have an arsenal of safe and effective treatments.
3. Expand direct services and increase access to treatment and care.
Leading the Fight Against Lupus for Over 40 Years
We have made pioneering contributions toward ending the brutal impact of lupus. Our efforts stimulated advances in lupus research that are providing insight into the underlying causes of lupus and its progression while creating unprecedented opportunities to expand the future knowledge base for lupus.
Our Contributions and Achievements in Lupus Research and Education
Throughout our 40+ year history, the Lupus Foundation of America has made pioneering contributions toward ending the brutal impact of this misunderstood and unpredictable disease.
We are:
* The first U.S. nonprofit organization to fund research on adult stem cells as a potential new treatment for lupus.
* The only organization with a dedicated program to fund research on childhood lupus.
* The first lupus organization to fund research into cardiovascular disease in lupus.
* The only nonprofit health organization with a dedicated focus on unlocking the mysteries of lupus and its impact on the brain and kidney.
DEVOTED TO ENDING LUPUS
The Lupus Foundation of America is devoted to putting an end to lupus, a chronic and potentially fatal autoimmune disease, while giving caring support to those who suffer from its brutal impact.
Lupus is a cruel mystery we must all solve together.
Lupus is an unpredictable and misunderstood autoimmune disease. It is difficult to diagnose, hard to live with, and a challenge to treat. Lupus has a range of symptoms, and strikes without warning.
Around 1.5 million people in the United States are living with lupus.
DRIVING LUPUS RESEARCH
Funding Top Research
Contributing to every major breakthrough in lupus research during the past 40 years.
Stimulating Funding
$550 million in federal funding for lupus research and education in just the last five years.
Improving the Drug Pipeline
Accelerating delivery of medicines with more than 70 potential therapies being studied for people with lupus.
IMPROVING LIVES:
839 Million Views
Of an awareness campaign raises support, understanding and compassion for those with lupus
Championing Support
Spearheaded the formation of the Congressional Lupus Caucus to increase lupus research funding, access to care, and awareness
6 Million People
Count on us each year to answer questions, provide support and bring hope
200+ Groups
in the World Lupus Federation, created by the Lupus Foundation of America, bringing greater attention to end lupus
Affordable Medication
Due to protecting Medicare Part D and access to care for all patients
Leading Scientific Initiatives
New roadmap for removing barriers to drug development
We commissioned the seminal independent national report by one of the nation’s most respected health policy organizations entitled, “Overcoming the Barriers to Drug Development in Lupus.” The report serves as a roadmap for industry, the Foundation’s national research program, and the federal government toward removing obstacles to the development of new lupus treatments.
Improving clinical trial design with industry to drive new therapies
We marshaled the resources of ten biopharmaceutical companies to unlock clues hidden in data from early trials of potential lupus treatments. This data will improve future trials and stimulate development of new treatments. Some of the field’s most influential thought leaders have called this accomplishment a “major breakthrough.”
Global standardized lupus disease instrument training
We created a worldwide portal now used by 3,000 clinical investigators in 50+ countries for training on clinical instruments to uniformly assess the effectiveness of potential new lupus therapies in global pharmaceutical trials. This standardization greatly increases the probability of obtaining positive trial results.
Funding Lupus Investigators
Over the past four decades, we have supported more than 400 lupus research studies conducted at 100+ medical institutions. Investigators we funded have contributed to many of the major advances in lupus research over the past forty years.
These studies have:
> Supported development of the first diagnostic test for lupus.
> Led to the first U.S. based clinical trial of mesenchymal stem cells (MSC) as a potential new treatment for lupus.
> Identified specific risk factors for cardiovascular disease in African American women with lupus.
> Created urgently needed treatment plans for children with lupus, especially those with kidney disease.
> Stimulated the first study on cognitive issues in diverse populations with lupus, raising awareness of cognitive dysfunction and its relationship to employment and disability.
> Discovered biomarkers to identify people at higher risk for lupus kidney disease.
Advocating to Increase Public and Private Investment
> Secured more than $550 million in federal funding within the past five years for lupus research and education.
> Stimulated formation of the Federal Working Group on Lupus to coordinate the efforts of all federal agencies with an interest in lupus.
> Opened the Department of Defense (DoD) Congressionally Directed Medical Research Program to support studies on lupus.
> Secured a dedicated $5 million annual commitment from the DoD to fund lupus research that hold promise for potential medical breakthroughs.
> Helped establish the first Congressional Lupus Caucus in the U.S. House of Representatives to educate Congress about the needs of people affected by lupus, their caregivers and lupus researchers.
> Secured funding to produce the first nationwide Ad Council campaign to promote awareness of lupus.
Our Research Work
Through decades of experience, we demonstrate visionary leadership in lupus research. We convene experts and partner with leading medical organizations that are on the front lines of lupus research to meet the needs of people with lupus.
Childhood Lupus
We established the first and only national childhood lupus research program.
Stem Cell Research
Stem cell therapy is one of the most promising frontiers in lupus research today.
Supporting Lupus Researchers
Our funding helps talented scientists and clinical investigators begin and continue their work in this field.
Collaborations and Partnerships
We work hand in hand with diverse partners and experts from around the world to advance lupus research.
Research We Funded in Specific Areas
We aggressively pursue a research agenda to find answers to the most challenging questions in lupus.
HOW CAN YOU HELP?
Ways to Get Involved
There are a lot of ways you can take action to advance our cause of ending lupus. Start your own event, make a donation, participate in a walk, or make others more aware of the disease. Get started here!
Walk to End Lupus Now
All over the country, lupus warriors and heroes walk together to raise funds and spread awareness. Find where you can join them.
Advocate With Us
Join us in getting the US government to commit to advancing lupus research.
Be a Corporate Partner
Raise awareness and critical funds to help bring an end to this devastating disease by getting your company and colleagues involved!
Start Your Own Fundraiser
Fundraise in any way you can think of. Whether you throw a party or sporting event and combine it with fundraising, host a livestream, or even donate a portion of sales from a product you sell, you can Make Your Mark on lupus.
Raise Awareness
The vast majority of people don’t know what lupus is or how it affects the body. You can help change that.
Race to End Lupus
Whether you are a novice or experienced athlete, you can combine running, cycling, swimming or walking with fundraising through a race of your choice or our week-long physical challenge, the Virtual 6 Challenge.
Make a Donation
Your support will help fight back against lupus, by helping to support and encourage the next generation of lupus researchers, deliver caring support services, provide disease education resources, and increase public awareness of lupus.
DONATE: https://www.lupus.org/donate
CONTACT LUPUS FOUNDATION:
Lupus Foundation of America, Inc.
2121 K Street NW, Suite 200
Washington, DC 20037
Business Hours: Monday to Friday 8:30 a.m. to 5:00 p.m. EST (-5 UTC) except federal holidays.
Phone: +1.202.349.1155 or 1.800.558.0121
Fax: +1.202.349.1156
E-mail: info@lupus.org
